Help with Serious Illness

With nearly 12 million Americans living with chronic obstructive pulmonary disease (COPD) and another 12 million not yet diagnosed, chances are high that you or someone you love is living with this troublesome lung disease. If you are the primary caregiver of someone living with COPD, you may feel unsure how to navigate the symptoms and stresses of COPD to ensure the highest quality of life for your loved ones. Roze Room Hospice provides specialized care for those living with end stage COPD, providing you and your loved one with exceptional care and support.

About COPD:

Chronic obstructive pulmonary disease is a lifelong, progressive lung disease. People with COPD experience shortness of breath, fatigue, persistent cough, and other distressing symptoms.

Symptoms of COPD Include:

• Shortness of breath, even when at rest
• Fatigue, depression, anxiety, or stress
• Lung infections or respiratory failure
• Weight loss
• Accelerated resting heart rate
• Pulmonary hypertension
• Wheezing and chest pain
• Increasing emergency room visits or hospitalizations for complications
• Continuous oxygen or increased use of bronchodilators
• Feeling the need to call your doctor’s office with questions about medications or symptoms

Living with COPD can be a roller coaster for both the patient and family caregivers. There can be periods of stability when the patient shows no symptoms at all, and other times when there are serious flare-ups that are challenging to control. This unpredictability makes caring for COPD difficult to manage alone. With our team’s support, symptoms can become more manageable, stress can be reduced, and those living with COPD can enjoy an enhanced quality of life as long as possible.

Help for COPD Patients

Roze Room Hospice can greatly improve the quality of life for COPD patients and their loved ones. Our specialized teams of caregivers include registered nurses and hospice physicians uniquely trained in the management and treatment of COPD. By providing both medical and personal care to control symptoms and reduce anxiety, stress, and worry, we can improve the quality of life for families coping with COPD.

• Respite care services that give family caregivers a much-needed break while providing expert care for your loved one
• Prevention of hospital stays and unplanned ER visits
• Management of COPD symptoms including shortness of breath, chest pain, stress, depression, and more
• Education about medication and coping with stress and issues related to the illness
• Whole-person, patient-focused care including physical, social, spiritual, and emotional support
• Patient and caregiver access to a registered nurse 24/7 for symptom management
• Education about the disease process, helping you understand your loved one’s disease and how to prepare for changing needs
• Full support from the Roze Room team including our physicians, nurses, CNAs, social workers, chaplains, and volunteers

It’s important to understand the symptoms of the disease, its progress, and when it’s time for Roze Room to bring an extra layer of support. COPD is a progressive disease and as the disease advances, COPD patients and caregivers may want assistance with managing the increasing needs of the patient.

In general, people living with COPD may be eligible for our care when they exhibit one or more of the following:

• Shortness of breath at rest and with any activity
• Recurring respiratory infections
• Using multiple inhalers with poor response
• Increased need for assistance from bed to chair
• Fatigue and/or increased cough
• Has made repeated trips every few months to the emergency room for respiratory failure or lung infections

If you are a family caregiver and have questions about the management of COPD and how to improve peace of mind and quality of life, we can help.

About CHF:

Congestive heart failure (CHF) is a chronic, progressive disease in which the heart does not supply blood to the body properly. Usually, fluid builds up around the heart and causes it to pump inefficiently, resulting in shortness of breath, fatigue, and irregular heartbeat.

CHF typically occurs after other conditions have already weakened the heart. High blood pressure, diabetes, heart attacks, coronary artery disease, and other heart-related conditions can be risk factors for CHF. Unfortunately, some of these factors cannot be reversed, meaning that some patients are inevitably at a higher risk for CHF.

Symptoms of CHF Include:

• Shortness of breath, even when lying down
• Chest pain
• Irregular heartbeat
• Persistent, dry cough
• Fatigue and weakness
• Swelling in ankles, feet, or abdomen
• Loss of appetite or nausea

Living with an advanced stage of CHF can be frustrating, disheartening, and frightening. Persistent bouts of symptoms can lead to frequent hospitalizations and late night emergency trips to the ER.

End stage heart disease patients require specific care for distressing symptoms like shortness of breath, sleeplessness, anxiety, pain, and depression that commonly develop with heart disease. Our specialized team of caregivers is uniquely trained in the management of cardiac disease. We dramatically improve the quality of life for those living with advanced heart disease and bring peace of mind and comfort to their families. In collaboration with your primary cardiologist, our nurses and physician will create a plan of care focused on managing the symptoms and stresses of heart disease so you can get back to living life as fully as possible.

Help for Congestive Heart Failure

 Roze Room Hospice offers real help for those living with CHF:

• Respite care services that give family caregivers a much-needed break while providing expert care for your loved one
• Prevention of hospital stays and unplanned ER visits
• Management of symptoms including stress, anxiety, sleep disorders, and shortness of breath
• Education about medication and coping with stress and issues related to the illness
• Whole-person, patient-focused care including physical, social, spiritual, and emotional support
• Patient and caregiver access to a registered nurse 24/7 for symptom management
• Education about the disease process, helping you understand your loved one’s disease and how to prepare for changing needs
• Full support from the Roze Room team including our medical director, nurses, CNAs, social workers, chaplains, and volunteers

People living with advanced heart disease are eligible for Roze Room care if they meet one or more of the following criteria:

• Chest pain and/or shortness of breath with and without activity
• Fatigue, shortness of breath, or functional decline
• Taking multiple cardiac medications or having a poor response to medications
• Patient and/or physician believe heart surgery is not a preferred option
• Personal choice not to pursue any further specialized treatment

If you are a family caregiver and have questions about the management of CHF and how to improve peace of mind and quality of life, Roze Room Hospice can help.

Living with Dementia

Together, advanced dementia and Alzheimer’s disease (AD) affect more than 50 million Americans. The symptoms may be subtle at first, but as the disease progresses, it can become extremely difficult for dementia patients to function independently. Individuals living with advanced dementia often cannot report their symptoms, leaving them untreated and vulnerable to physical pain, psychological pain, and various other symptoms relating to AD.

Those coping with Alzheimer’s disease and other forms of dementia face a challenging journey as memory loss, confusion, and difficulty making decisions become more progressive over time. Families of those living with dementia face a similarly challenging journey as they often struggle alone to care for their loved one.

Help for Dementia Caregivers

Caring for a loved one with Alzheimer’s or advanced dementia can be disheartening and frustrating. The uncontrollable and unpredictable nature of dementia can make you feel overwhelmed and helpless. Dealing with distressing symptoms like confusion, wandering, or emotional outbursts can be challenging, especially for a family caregiver. Roze Room provides real support to caregivers. Our extra layer of support brings expert medical care but also the education and resources you need to help you better navigate your caregiving role. You don’t have to face this journey alone. Being a caregiver for a loved one with Alzheimer’s can be challenging but the care you give your loved one can also be a rewarding experience. We’ll do this together so you have the support, answers, and resources that help you and your loved one live a fuller life.

How We Help Advanced Dementia Patients

• Respite care services that give family caregivers a much-needed break while providing expert care for your loved one
• Prevention of hospital stays and unplanned ER visits
• Management of dementia-related symptoms including confusion, sundowners, anxiety, and frequent UTIs
• Education about medication and coping with stress and issues related to the illness
• Whole-person, patient-focused care including physical, social, spiritual, and emotional support
• Patient and caregiver access to a registered nurse 24/7 for symptom management
• Education about the disease process, helping you understand your loved one’s disease and how to prepare for changing needs
• Full support from the Roze Room team including our physicians, nurses, CNAs, social workers, chaplains, and volunteers

People living with advanced dementia are eligible for Roze Room care if they meet one or more of the following criteria:

• Speaks few intelligible words
• In need of a pureed diet
• Continuing weight loss
• Needs help to sit up, eat, get dressed, and groom themselves
• Unable to walk without assistance or bed-bound
• Shows signs of severe anxiety

If you are a family caregiver and have questions about the management of advanced dementia and how to improve peace of mind and quality of life, we can help.

Our care usually begins when both the patient and their physician agree that the cancer can no longer be cured, and the focus should shift to quality of life, pain management, and emotional and spiritual support. Roze Room Hospice makes sense when your loved one begins to tire of aggressive treatments that are no longer providing real benefits and their wishes shift to feeling as well as possible for as long as possible.

We  improve quality of life for advanced cancer patients by bringing expert care that manages pain and symptoms –  care that focuses on both physical comfort and emotional wellbeing. Our team of nurses and physicians works closely with the patient, their family, and their physician to develop a comprehensive care plan based uniquely on their goals, hopes and wishes. We help control the physical and emotional effects of cancer so you and your loved one can regain the ability to focus on what matters most.

How Roze Room Hospice Helps Advanced Cancer Patients

• Respite care services that give family caregivers a much-needed break while providing expert care for your loved one
• Prevention of hospital stays and unplanned ER visits
• Management of physical and emotional pain that results from end stage cancers
• Education about medication and coping with stress and issues related to the illness
• Whole-person, patient-focused care including physical, social, spiritual, and emotional support
• Patient and caregiver access to a registered nurse 24/7 for symptom management
• Education about the disease process, helping you understand your loved one’s disease and how to prepare for changing needs
• Full support from the Roze Room team including our physicians, nurses, CNAs, social workers, chaplains, and volunteers

 Advanced Cancer Patients Are Usually Eligible for Roze Room Care When They Exhibit One or More of the Following:

• Cancer has metastasized to multiple sites or is in stage III or IV
• Curative treatment is unlikely to improve quality or length of life
• Unintentional, progressive weight loss
• The burden of treatment on the patient and family outweighs the potential benefits
• Continued decline despite disease-directed treatments

If you’re a family caregiver caring for a loved one with advanced cancer, Roze Room Hospice can bring a level of support, expert care and comfort that improves quality of life for you and your loved one.

End stage Liver Disease or Kidney Disease can be physically, emotionally, and financially stressful to patients and their loved ones. The progression of symptoms can be distressing and overwhelming, leaving patients and loved ones feeling frustrated and overwhelmed. As the disease progresses, it is often necessary to rely on the support of an experienced healthcare team, allowing you and your family to have the support and care that will enable you to focus less on the disease and more on living as fully as possible.

Symptoms can Include:

• Excessive itching, bruising, or bleeding
• Buildup of fluid and swelling in the abdomen
• Shortness of breath
• Nausea
• Abdominal and back pain
• Reduced brain function

Help for Patients with Liver or Kidney Disease

The progression of symptoms as a loved one approaches the later stages of Liver or Kidney Disease are distressing to patients and their families.

Through expert care that helps manage symptoms and eases the stress and burden of illness, we can help improve quality of life for as long as possible. We empower family caregivers with support, knowledge and resources. We’ll give you tools to cope with and understand the changes that accompany disease progression and help guide you in the days ahead.

People With Advanced Liver Disease Or Kidney Disease Patients Are Usually Eligible for Roze Room Hospice When They Exhibit One or More of the Following:

• The patient is a transplant patient whose transplant has failed, and the patient is not eligible for, or refuses, another transplant
• The sudden or progressive loss of functional independence
• Mainly immobile
• Confusion or cognitive impairment
• Bowel dysfunction
• Breathing difficulties
• Restlessness

If you are a family caregiver and have questions about the management of Liver or Kidney Disease and how to improve peace of mind and quality of life, Roze Room Hospice can help.

Living with Amyotrophic lateral sclerosis, commonly known as both ALS and Lou Gehrig’s disease can be a physical and emotional battle for both the patient and their loved ones. Reduced mobility, trouble communicating, and difficulty breathing are just a few facing those living with ALS. Since this disease is progressive, its unpredictability can be difficult to manage causing emotional stress as you struggle to cope with changes in your loved one’s well being.

Caregivers may feel alone, overwhelmed, and unqualified to handle the many challenges that come with caring for a loved one with ALS. But you don’t have to face ALS alone, Roze Room can help. Our specialized team of caregivers, nurses, and volunteers are uniquely trained in the management of ALS symptoms and stresses. Will bring an extra layer of  support to both you and your loved one, help you understand what to expect and help guide you through the days ahead.

Ways Roze Room Helps ALS Patients:

• Respite care services that give family caregivers a needed break while providing expert care for your loved one
• Prevention of hospital stays and unplanned ER visits
• Management of physical and emotional pain that results from living with ALS
• Education about medication and coping with stress and issues related to the illness
• Whole-person, patient-focused care including physical, social, spiritual, and emotional support
• Patient and caregiver access to a registered nurse 24/7 for symptom management
• Education about the disease process, helping you understand your loved one’s disease and how to prepare for changing needs
• Full support from the Roze Room team including our physicians, nurses, CNAs, social workers, chaplains, and volunteers

Living with advanced ALS can be a challenging experience. Roze Room provides an extra layer of support to help you manage the symptoms and stresses of ALS enabling you and your loved ones to focus on what truly matters.

ALS Patients Can Be Eligible for Roze Room Care if They Exhibit One or More of the Following:

• Wheelchair or bed-bound
• Barely intelligible speech
• Significant shortness of breath or severely impaired breathing
• In need of a pureed diet and assistance with eating
• Requires major assistance with dressing and grooming, or is totally dependent on others for these activities
• Does not wish to be dependent on feeding tubes for nutrition and hydration
• Does not want to be placed on a ventilator for breathing, or wishes to discontinue mechanical ventilation

We work with your physician to develop an individualized and comprehensive care plan focused on improving quality of life. ALS patients can receive care in their home, assisted living center, or wherever home may be.

If you are a family caregiver and have questions about the management of ALS and how to improve peace of mind and quality of life, Roze Room Hospice can help.