Living with Amyotrophic lateral sclerosis, commonly known as both ALS and Lou Gehrig’s disease can be a physical and emotional battle for both the patient and their loved ones. Reduced mobility, trouble communicating, and difficulty breathing are just a few facing those living with ALS. Since this disease is progressive, its unpredictability can be difficult to manage causing emotional stress as you struggle to cope with changes in your loved one’s well being.
Caregivers may feel alone, overwhelmed, and unqualified to handle the many challenges that come with caring for a loved one with ALS. But you don’t have to face ALS alone, Roze Room can help. Our specialized team of caregivers, nurses, and volunteers are uniquely trained in the management of ALS symptoms and stresses. Will bring an extra layer of support to both you and your loved one, help you understand what to expect and help guide you through the days ahead.
Ways Roze Room Helps ALS Patients:
- Respite care services that give family caregivers a needed break while providing expert care for your loved one
- Prevention of hospital stays and unplanned ER visits
- Management of physical and emotional pain that results from living with ALS
- Education about medication and coping with stress and issues related to the illness
- Whole-person, patient-focused care including physical, social, spiritual, and emotional support
- Patient and caregiver access to a registered nurse 24/7 for symptom management
- Education about the disease process, helping you understand your loved one’s disease and how to prepare for changing needs
- Full support from the Roze Room team including our physicians, nurses, CNAs, social workers, chaplains, and volunteers
Living with advanced ALS can be a challenging experience. Roze Room provides an extra layer of support to help you manage the symptoms and stresses of ALS enabling you and your loved ones to focus on what truly matters.
ALS Patients Can Be Eligible for Roze Room Care if They Exhibit One or More of the Following:
- Wheelchair or bed-bound
- Barely intelligible speech
- Significant shortness of breath or severely impaired breathing
- In need of a pureed diet and assistance with eating
- Requires major assistance with dressing and grooming, or is totally dependent on others for these activities
- Does not wish to be dependent on feeding tubes for nutrition and hydration
- Does not want to be placed on a ventilator for breathing, or wishes to discontinue mechanical ventilation
We work with your physician to develop an individualized and comprehensive care plan focused on improving quality of life. ALS patients can receive care in their home, assisted living center, or wherever home may be.
If you are a family caregiver and have questions about the management of ALS and how to improve peace of mind and quality of life, Roze Room Hospice can help.